The Every 90 Minutes Foundation has the sole mission to support the most promising research to find a cure for ALS. Jay Smith and his family created the Foundation in 2012 following his diagnosis with ALS. Together with an active board and advisors, Jay has led the Foundation to become one of the most recognizable on social media and throughout the ALS community.
Every 90 minutes someone else is given an ALS diagnosis in the United States and told the reality of the disease: that there is no treatment, no cure. Inspiring the fight against ALS through this fact, the Foundation raises awareness through active social media marketing campaigns and events across the US. Members of its board also have written extensively about living and fighting ALS in publications such as the Huffington Post, New York Times, and countless other media outlets. Its advisory board is made up of Matt Bellina (PALS), Sarah Coglianese (PALS), Stephen Finger (PALS), Bob Hebron (CALS), Peter Strobel (PALS) and Pat Quinn (PALS).
As a Global Affiliate of ALS.net, the Every 90 Minutes Foundation and its advisory board members have provided more than $750,000 for ALS research at the ALS Therapy Development Institute. Additionally, they have lent their collective marketing minds to the inception of the new ALS.net, providing guidance in the launch of the ALS.net website, media, fundraising and outreach efforts.